A plea to keep surveillance out of the holidays

(Dec 20, 2018) You better watch out. You better not cry.You better not pout I’m telling you why.Santa Claus sees all that you do.But it was alright, everything was alright, Christmas was finished. He had won a spot on the Nice List. He loved Kris Kringle. Another holiday season is almost in the books, and it seems like only yesterday I opined on the incredibly creepy "Elf Surveillance Dummy CCTV Camera." It is a mock device that "thoughtful" parents installed into the ceiling of their children's rooms to crea... Read More

Top 10 Privacy Perspectives of 2018

(Dec 19, 2018) We all knew 2018 was going to be a busy year, but it's fair to say that, somehow, it was even crazier than most of us expected. Of course, 2018 is the year of the EU General Data Protection Regulation. May 25 was the big day. And like Y2K, the world didn't end May 26. For those of us on the IAPP publications team, we thought life after May 25 would consist of more operational how-tos for implementing and operationalizing GDPR-compliance initiatives, but, lo and behold, GDPR was just the tip of ... Read More

Podcast: How do we deal with viral hate online?

(Jul 13, 2018) Anyone using the internet today is surely aware of the viral hate that displays itself everywhere, from social media platforms to newspaper comment sections to group chat forums. It is in such forums that marginalized groups face the kind of cyberbullying that surely exists on our streets but seemingly not to the extremes we see when users can hide behind a screen. In this live event, hosted by Hogan Lovells in Washington to commemorate Pride Month, Chris Wolf talks to host Angelique Carson, CIP... Read More

On the potential risks of using public clinical trial data under GDPR

(Jul 12, 2018) Regulatory agencies around the world have established or are piloting policies and regulations for the public sharing of clinical trial documents. Given that clinical trial documents contain personally identifying health information about trial participants, it is necessary to anonymize these documents. While there are efforts among the agencies to harmonize their anonymization guidance and practices, they are governed by different privacy laws and, especially in the case of the U.S. Federal Dru... Read More

Are there risks of using public clinical trial data under GDPR?

(Jul 12, 2018) A number of regulatory agencies around the world have established, or are piloting, policies and regulations for the public sharing of clinical trial documents. The European Medicines Agency has already started sharing clinical trial documents under its Policy 0070. Health Canada has published amendments to the Food and Drug Regulations allowing for more public sharing of clinical trial documents. The U.S. Food and Drug Administration has recently initiated a pilot program to evaluate the sharin... Read More

UK ICO intends to fine Facebook 500,000 GBP

(Jul 11, 2018) Following an investigation launched in 2017 over the use of political campaigns' use of data, the U.K. Information Commissioner's Office has taken several actions against various parties, including warning letters, audit notices, and a notice of intent to levy a 500,000 GBP fine against Facebook.  In a statement, U.K. Information Commissioner Elizabeth Denham said, "Facebook has failed to provide the kind of protections they are required to under the Data Protection Act. Fines and prosecutions ... Read More