Kathryn Fox, CIPM


Cystic Fibrosis Foundation

Foundation Privacy Officer

Kathryn Fox is the Privacy Officer for the Cystic Fibrosis Foundation, a medical and patient advocacy non-profit based in Bethesda, MD. 

Kathryn is responsible for ensuring the privacy compliance for all sensitive information held by the Cystic Fibrosis Foundation, including an extensive patient registry, a donor database, a patient assistance database, and employee data.

Prior to joining the Cystic Fibrosis Foundation, Kathryn worked at the U.S. Department of Health and Human Services’ Office for Civil Rights, in HIPAA and civil rights enforcement. 

Kathryn has been a member of the IAPP since 2015 and has earned her CIPM certification


Contributions by Kathryn Fox

  • Member of Training Advisory Board 2022 - 2023