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Daily Dashboard | Data brokers going straight to patients for their data Related reading: EDPS Giovanni Buttarelli, 1957–2019

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Data brokers have begun to bypass health care organizations when they attempt to get patient information by going straight to patients themselves, FierceHealthcare reports. While patients can share their information directly with brokers for monetary compensation, the data is then outside of the patient-provider relationship and no longer covered by the Health Insurance Portability and Accountability Act. Privacy advocates believe Congress should pass new laws to address this dynamic. "I have had a growing concern about the fact that we have protections for health data only when it's held by certain kind of entities — by our doctors, by our hospitals, by our health plans, etc. — but not when it's held by other types of entities," Crowell and Moring’s Health Care Group Partner Jodi Daniel said. "It's very difficult for an individual to understand how their information might be used."
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