Politico asked health care professionals whether the European Union can unlock the benefits of sharing health care data while still respecting patient privacy. Digital Medicine Society Executive Director Jennifer Goldsack said the health care industry must improve how it seeks consent from those who generate health data and informs them about any potential consequences. MedConfidential Coordinator Phil Booth said researchers need to earn the trust of those who contribute their health data to projects or else they will no longer feel compelled to share any information. “Involving actors trusted by patients, such as advocacy organizations, patient organizations and non-profit organizations, as well as health care professionals, would also be a step in the right direction,” EURORDIS Scientific Director Virginie Bros-Facer said.
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