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Daily Dashboard | Popular genetic-testing companies agree to best practices guidelines Related reading: Notes from the IAPP, Jan. 22, 2021





In partnership with genetic-testing companies, the Future of Privacy Forum released "Privacy Best Practices for Consumer Genetic Testing Services" to help provide a policy framework for the collection, retention, sharing and use of genetic data gathered through genetic testing. The Washington Post reports Ancestry, 23andMe and other popular genetic-testing companies have agreed to the new guidelines, saying they would obtain users' "separate express consent" before sharing data with third parties, including insurers. The companies also agreed to disclose the number of law enforcement requests received each year. "I don't think the average consumer has wrapped their head around the range of issues they should think about when they make a decision to share [DNA] data," said FPF Chief Executive Officer Jules Polonetsky, CIPP/US. (Registration may be required to access this story.)
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